Sunday, November 13, 2011
Welcome To Holland
It's taken me a long time to figure out how to write about Matthew coming into our lives. I've felt so overwhelmed about what to say and how to say it, that I just avoided it. I think I needed to meet him; to realize that I knew him during my pregnancy, because I didn't think I did. (More on that another time). Nevertheless, he's here! He's joined our family and now I'd like to try and get it all down. I'm starting with this essay. I don't know how well known it is, I only know that I read it years ago, long before I ever knew that one day I'd have a child with Down syndrome. Mostly I think it describes the experience perfectly (so far). But then I read it sometimes and have trouble with the pain part; having a child with Down syndrome is not something I want to feel sad about for the rest of my life. I don't think she's actually saying that, but the sadness part is complicated and real and has to be kept in perspective. So here it goes! Welcome to my new life--in Holland.WELCOME TO HOLLAND
by Emily Perl Kingsley.
by Emily Perl Kingsley.
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
Friday, November 11, 2011
Isabella's Ramblings
Isabella: What's the mailman doing?
Me: He's delivering the mail.
Isabella: NO. He's going to get a haircut, and THEN he's going to deliver the mail. Silly Isabella. Mailmans don't get haircuts.
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Isabella: Mama can we lie down on your bed and think about things?
Me: Sure. (we lie down and get cozy) What do you want to think about?
Isa: (Isa puts her hands behind her head and looks over at a print hanging above our bed, that has lemons on it)
Hmmm...Oranges!
Me: What do you think about oranges?
Isa: I think they're yellow and sour and...
Me: Don't you mean lemons?
Isa: Oh yes!
Me: And what can you make with lemons? (the print also has a picture of a glass of lemonade)
Isa: Apple pie!
Thursday, November 10, 2011
Courthouse Drama
I expressed my idea of going to the courthouse out loud in front of Isabella, which was my first mistake. My second mistake was the one where my mom and I loaded everyone up in her car to head downtown to the courthouse before making the more rational decision to call the number listed on the summons and ask. When the operator informed me that they didn't even need me, and therefore I didn't have to go to the courthouse, Isabella was distraught. No visit to the courthouse? Where was the justice?! I tried to convince her that a trip to Target was far superior to seeing the courthouse. No! She begged to see the courthouse, to go inside and look around. (Secretly my pride oozed at the idea that my 3 year old had such sophisticated interests--even though she had no idea what a courthouse was). My mom and I looked at each other and decided to indulge her curiosity. Mom dropped us off outside the building and drove Baby Matthew around the block while we walked up the stairs and inside the foyer. Before us stood the metal detector and various staircases that led to places where "people worked". And there is was: The Courthouse.
The tour took all of 20 seconds. Isabella immediately squirmed her way out of my arms. It was time to go outside--and look for sticks. That's my girl.
Sunday, September 11, 2011
All Set! A Short and Sweet Summer Recap...
Monday, July 4, 2011
Fireworks in 3 Acts
Act I: Anticipation
What Happens When Nana is Away...(Video)
My mom is visiting family back East. We miss her. :)
P.S. If you've subscribed to the blog email, click on the blue title in the email you get. It's a link that will take you to the video.
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